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See can.lyme home page for important info about federal bill
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lou2



Joined: 19 May 2006
Posts: 158

PostPosted: Thu Jun 07, 2012 5:34 am    Post subject: See can.lyme home page for important info about federal bill Reply with quote

The Green party will be introducing a lyme bill and help is wanted by a lyme patient involved in this effort. See canlyme home page for details.

Am posting this here because some readers of the forum go directly to the live discussion and miss what is posted on the home page.
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RitaA



Joined: 05 Nov 2010
Posts: 948

PostPosted: Thu Jun 07, 2012 7:18 pm    Post subject: Reply with quote

Thanks for posting this, lou2.

I often just skip the home page on my way to the forum, and I would have missed this had you not pointed it out here.
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linlai



Joined: 03 Jun 2008
Posts: 636

PostPosted: Fri Jun 08, 2012 5:40 am    Post subject: Reply with quote

Great -- done!

Linda
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momoftwohugs



Joined: 12 Jun 2008
Posts: 494

PostPosted: Fri Jun 08, 2012 7:30 am    Post subject: Reply with quote

Done!!
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2ND



Joined: 04 Sep 2008
Posts: 387

PostPosted: Fri Jun 08, 2012 8:03 am    Post subject: Reply with quote

Thanks Lou2, I go right to Live Discussion and would have missed this too. I guess it would be a good idea to check out CanLyme's home page more often. I def. want to know about the Green Party introducing a Lyme Bill. Gotta love Elizabeth May!

From the Green Party's website:
May will introduce a Private Member’s Bill calling for the development of a national strategy to address the challenges of the timely recognition, diagnosis, and treatment of Lyme disease. The bill also calls for funding for provinces and territories to implement the strategy.

“Lyme disease can be devastating. Too many Canadians are now disabled, deprived of the joy of family and friends, of school or work, due to Lyme disease. The public and the medical community need to be educated as to the increasing incidence and range of this disease,” said May.

http://www.greenparty.ca/media-release/2012-05-02/may-raising-awareness-about-lyme-disease
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Charolette



Joined: 09 Feb 2006
Posts: 1705

PostPosted: Sat Jun 09, 2012 7:42 am    Post subject: CanLyme Homepage re: June 20th in Ottawa Reply with quote

If anyone from the Toronto/GTA are thinking about attending in Ottawa can you please let me know?

I'm looking to either share a vehicle or travel with others using public transit (i.e. Greyhound or ViaRail). Flying is too expensive for me...

iamcharolette@yahoo.ca

Am also looking for more specific information as to time-lines for the events on June 20th to help co-ordinate with travel to/from Ottawa. Many thanks!
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canlymec



Joined: 16 Apr 2005
Posts: 380

PostPosted: Sat Jun 09, 2012 5:54 pm    Post subject: Reply with quote

Please visit our homepage for updates on your way to this forum... Thanx, Jim
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Charolette



Joined: 09 Feb 2006
Posts: 1705

PostPosted: Sat Jun 09, 2012 7:18 pm    Post subject: See CanLyme home page for important info about federal bill Reply with quote

canlymec wrote:
Please visit our homepage for updates on your way to this forum... Thanx, Jim


Not sure where to look other than the initial posting. Have been in contact with Chris but no details as to time(s) or specific details.

Will be travelling with Waterdown + 1-other from the GTA.
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2ND



Joined: 04 Sep 2008
Posts: 387

PostPosted: Mon Jun 11, 2012 10:38 am    Post subject: Re: See CanLyme home page for important info about federal b Reply with quote

From David's blog:
http://www.dleggett.com/blog/2012/06/07/mp-elizabeth-may-to-introduce-national-lyme-strategy-bill-on-june-20th/

On Wed. June 20th, 2012 in Ottawa, Elizabeth May is planning to introduce a private member’s bill relating to Lyme disease. Look for a press conference that day and the reading of the bill by Elizabeth to our federally elected MP’s later the same day.

Elizabeth is allowed to introduce one private member’s bill in her four year term. She has chosen to help Canadians with Lyme disease get their right to health care back

If you need further information, check out Elizabeth May’s web site. Also, use my (David Leggett) contact page to ask for assistance, or to find out how to include your picture in the display of Canadians suffering with lyme disease – this display will be part of Elizabeth May’s press conference scheduled to occur before the bill is introduced in parliament on June 20th.

I have also just put in a call to Eliz. May's office and if/when they phone me back, hope to be able to post a time and a place for her press conference.

Hope YOU have sent your photo in for Nicole's collage - info on CL's home page
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2ND



Joined: 04 Sep 2008
Posts: 387

PostPosted: Mon Jun 11, 2012 11:40 am    Post subject: Re: See CanLyme home page for important info about federal b Reply with quote

Just want to make it clear that this part of the above post in the quote below is what I'VE written, and is NOT from Leggett's blog. Sorry to make it so confusing. I find "bolding", underlining, etc. difficult on a post.

2ND wrote:


I have also just put in a call to Eliz. May's office and if/when they phone me back, hope to be able to post a time and a place for her press conference.

Hope YOU have sent your photo in for Nicole's collage - info on CL's home page
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RitaA



Joined: 05 Nov 2010
Posts: 948

PostPosted: Tue Jun 12, 2012 10:11 am    Post subject: Re: See CanLyme home page for important info about federal b Reply with quote

2ND wrote:
I have also just put in a call to Eliz. May's office and if/when they phone me back, hope to be able to post a time and a place for her press conference.

Hope YOU have sent your photo in for Nicole's collage - info on CL's home page


Thanks for the reminder about Nicole's collage and for doing your best to get specific details about the planned press conference.

With Members of Parliament expected to begin their summer break at the end of next week, and all the voting that needs to take place before then, I must admit that I'm a bit concerned about a possible delay to the introduction of Elizabeth May's Lyme disease bill. I'm hoping my concern is completely unwarranted.

Rita
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RitaA



Joined: 05 Nov 2010
Posts: 948

PostPosted: Wed Jun 13, 2012 9:46 am    Post subject: Reply with quote

This was published earlier today. I encourage everyone to read it:

http://www.sookenewsmirror.com/news/158609585.html

Quote:
Lyme disease in private member's bill

Published: June 13, 2012 5:00 AM
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sw_emigre



Joined: 15 Mar 2010
Posts: 186

PostPosted: Fri Jun 15, 2012 1:13 pm    Post subject: Reply with quote

I just sent off separate emails to my MP, an MP in another riding where I donated last campaign, and the party's leader. Short and to the point is all that is necessary.

Fire away!
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RitaA



Joined: 05 Nov 2010
Posts: 948

PostPosted: Wed Jun 20, 2012 12:27 am    Post subject: Reply with quote

Please note the following:

http://meerkatmarlene.blogspot.ca/2012/06/of-support-ctv-news-press-conference.html

Quote:
Tuesday, June 19, 2012

A Press conference was being planned for around 11:00 am on June 20, to talk about the Bill mentioned above. That was now moved to Thursday, June 21, around 11:30 am. Many Lymies, their caregivers, families or friends are planning to be in Ottawa to lend weight and support to the issue.
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RitaA



Joined: 05 Nov 2010
Posts: 948

PostPosted: Wed Jun 20, 2012 1:17 am    Post subject: Reply with quote

I just noticed this on the CanLyme home page:

Quote:
Urgent request: To all Canadian Lyme patients, please send a current photo of yourself to be used in a collage of images of those affected by Lyme disease to form a backdrop as Lyme sufferer Nicole Bottles delivers a speech in Ottawa. Her speech will be given at a press conference Thursday, June 21st, 2012 at 11:30 am, during which Elizabeth May, leader of the Green Party of Canada, will announce a new Lyme Bill to be introduced into Parliament that will force the hand of the federal government to do what they should have been doing 25 years ago. The press conference will take place at Parliament Hill, Ottawa, in the Charles Lynch media room.
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