Canadian Lyme Disease Foundation Bulletin Board

[Gordo]

National Security, Access to Information
http://canadafreepress.com/index.php/article/1522
Canadian Government in denial about the toll Lyme Disease is taking on Canadians
By Judi McLeod Wednesday, January 23, 2008


Imagine the mental agony of being told by Canadian doctors that you do not have Lyme disease but having a diagnosis in hand from American doctors saying that you do.

What do you then do if the Canadian federal government flatly denies your Access to Information request?

That’s the medical dilemma of Gordon Anderson, who asks “What are we going to do?”

And there are many other average Canadians asking the same question without getting the answers.

Claiming that it is a matter of “national security”, the Canadian government insists that Canadians have no right to records that measure the ability of our national medical laboratory to detect “the fastest growing animal to human disease in the northern hemisphere”.

It’s a worry you won’t find in media headlines, but a worry Canadians left in the dark about lyme must take to their beds every night.

It’s not that the possibilities of coming down with Lyme Disease is remote. The possibilities of getting Lyme Disease originate from something that there is plenty of --the Great Canadian outdoors. Ticks that carry Lyme Disease can be found on your own front lawn, on your pets, on logs, in tall grass or common brush.

The safest rule of thumb advises that if you are outside, do not brush up against tall grass or sit on logs.

We all complain about bureaucratic red tape, but surely the denial of accurate health records is of the kind that hurts most.

“The Canadian Lyme Disease Foundation decided they must find out how well our federal medical laboratory in Winnipeg does at detecting Lyme disease in humans,” said James Wilson, President of the Canadian Lyme Disease Foundation.

Fully certified, proficiency tested and accredited laboratories in the U.S. have been finding that several thousand Canadians are actually positive for Lyme Disease after a negative Canadian test. Many of these Canadians had been given diagnoses ranging from multiple sclerosis, mental illness, to chronic fatigue syndrome.

But the successful outcome of Lyme disease treatment demands early diagnosis, so the Canadian Lyme Disease Foundation sought to find out why Canadian lab tests in so many instances are negative followed by a positive U.S. test. These patients only then get the treatment they need. The proof is in the pudding, they do remarkably well in recovery after having been left sick for years in many instances.

Proficiency testing of laboratories measuring their ability to detect specific disease is required in most jurisdictions for laboratories to retain certification. The U.S. labs are proficiency tested and have excellent results. We expect similar results from our federal labs but we will never know if a small group of people who hold the lives of Canadians in their hands has their way.

“If denying our request because of “national security” sounds absurd to you, it did to us as well,” says Wilson. “Something is going on. One provincial access to information request revealed minutes of a meeting involving provincial medical authorities and our federal laboratory representatives who discuss hundreds of unique cases of lyme disease in only a three-year period in that province. Officially, in that same three-year period the reported number of cases was zero.

“We had also previously asked to be allowed to participate in proficiency testing of our Canadian labs but that request was quickly denied as well.

“To put this in proper perspective, Canada has some of the highest rates in the world of diseases and conditions sharing the same symptomology as lyme disease but we have virtually no lyme disease, in stark contrast to every other northern hemisphere country. There are 1.5 million Canadians suffering from disease of unknown origin. Many of these mirror the symptoms of chronic lyme disease. We want to know how many are in fact lyme. We believe that number will prove to be substantial. It is implausible that Canada has protective border crossings that prevent birds that are carrying lyme disease from entering our country. It is much more plausible that we have many cases of lyme disease. Our cold temperatures do not account for our low numbers as previously stated by the government. Finland, a much colder country, has thousands more cases than Canada.

“The best way to prove the prevalence of lyme in the bodies of Canadians would be through aggressive research including multiple tissue biopsies from skin and internal organs of those individuals who share the symptoms of lyme disease, and post-mortem study of those who did not survive the onslaught of their illness. We have had many requests Canada wide from very sick individuals or their family members who want to leave their or their loved ones remains for this specific research. Most have not been diagnosed with lyme, but suffer all of the symptoms.”

Background information the Canadian government is not talking about:
Our friendly migratory birds transport the ticks that carry Lyme disease around at random. Biting insects such as mosquitoes and horse flies have also been shown to transmit the disease. In the U.S. where our springtime migratory birds come from there is an estimated 200,000 human cases of Lyme disease each year and this is increasing year over year. Our government labs confirm fewer than 60 cases per year in Canada.

We do know Lyme is being misdiagnosed as other illnesses, or not diagnosed at all. Lyme disease is robbing many Canadian children of their youth and adults of their careers.

Lyme disease can cause serious long-term health issues if not identified and treated early. It can affect the brain, eyesight, hearing, nervous system, muscles, joints, digestive tract, skin and most organs including the heart, liver, spleen, and kidneys. Because Lyme disease is a multi-system disorder many systems of the body can be affected at once.

I have not posted the National Citizens Coalition Petition regarding Lyme disease but I will do so soon.

[Gordo]

Mail may be sent postage-free to any Member at the following address:

House of Commons
Parliament Buildings
Ottawa, Ontario
Canada
K1A 0A6

Go to for more INFO http://www.parl.gc.ca/common/SenatorsMembers_house.asp?Language=E&Parl=37&Ses=2&Sect=hoccur

[Gordo]

Contact a Member of Parliament Today
Writing or phoning a Member of Parliament is an effective way to protest or praise what is going on in Ottawa. The following link http://www.parl.gc.ca/common/SenatorsMembers_house.asp? will give you the contact information for every MP in Ottawa, and the tips below will make communicating with an MP easy and effective.

Writing a Member of Parliament

Be specific
State your position
Ask for a response
Follow-up
Phoning a Member of Parliament

Identify yourself
Explain why you are calling
Request a written response
Thank the person for their time

[Charolette]

Gordo,

Can this thread be put under the 'Lyme' section of the Discussion Board so that everyone see's it?

Thanks!
/ Charolette

[Gordo]

Yes I was trying to get it there, thanks can you move it???

[sherry]

I sent a little over 200 emails with this information attached. I did this yesterday and have, so far, recieved zero replies. I asked two questions...

1..can you offer help getting money into the hands of the PHAC eartagged for Lyme research and epidemiology of Bb.

2. can you get a public inquiry into the handling of blood and the proficiency of testing for Bb in our National Lab.


Sherry
_________________
There is always Hope.